December Meeting — December 15, 2016

December Meeting

We met on December 12th to discuss:

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Upcoming meeting — November 15, 2016

Upcoming meeting

All meetings will be held at King´s College London in room 3.1.1, Strand Campus, East wing.

———
16th November 1-3pm

 We will discuss the “National Data Guardian for Health and Care Review of Data Security, Consent and Opt-Outs (https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/535024/data-security-review.PDF) and the following article, on privatisation of health data: http://www.nature.com/news/stop-the-privatization-of-health-data-1.20268

New paper from the Lab – Croatian Medical Journal — May 4, 2016
Could DTC Genome Testing Exacerbate Research Inequities? — January 21, 2016
Reading club January, 28th — January 18, 2016

Reading club January, 28th

Our next meeting is scheduled on the 28th (14-16, KCL Strand Campus, East Wing, seminar room).

Readings

Bruce Jennings “Right Relation and Right Recognition in Public Health Ethics: Thinking Through the Republic of Health”

http://phe.oxfordjournals.org/content/early/2015/11/26/phe.phv032.short?rss=1

Keith Syrett “Comments on Jennings”

 http://phe.oxfordjournals.org/content/early/2015/04/16/phe.phv009.full.pdf+html

Call for Abstracts — December 8, 2015

Call for Abstracts

Two members of the Lab (Mauro Turrini & Lorenzo Del Savio) will convene a session at the 4S/EASST 2016 Conference (Barcelona) about IT & Data in Healthcare and Medicine. Please circulate!

 

Call for abstracts

4S/EASST 2016 Conference (Barcelona)

Submission from 7-12-2015 to 21-2-2016

http://www.sts2016bcn.org/

 

Track: Biomedical sharing economies

Convenors: Mauro Turrini & Lorenzo Del Savio

Info:

mauro.turrini@univ-paris1.fr   

lorenzo.delsavio@iem.uni-kiel.de

Digital technologies are reducing the cost of production and sharing of bio-data, stimulating new approaches to healthcare and biomedical research. On one hand, personal data may be adopted as a means to devise more precise strategies to diagnose, prevent, and treat diseases, even bypassing the medical mediation. On the other, non-professional citizens are recruited for research tasks such as data and sample collection, data coding, and problem solving in data-intensive large scale biomedical projects, which are complementing, and in some cases competing with, experiment-based approaches. An increasing number of crowdsourcing internet platforms, such as PatientsLikeMe, OpenHumans, Personal Genome Project, aggregate participants to generate biomedical datasets, often framing “lay” participation in terms of patient empowerment, healthy citizenship, research activism, or altruistic sharing, in line with other forms of contemporary sociality. Some of these platforms embody new forms of valorisation that put at work patients and healthy volunteers.

This track session explores issues of patient empowerment, biodata ownership, privacy and control in these biomedical sharing economies. The aim is to expound their potential for making healthcare and biomedical research more inclusive, broadening healthcare and scientific citizenship, and deepening democracy as well as their capacity of furthering exclusion and creating new hierarchies and forms of exploitation. We seek papers that address questions pertaining expectations, motivations and experiences of the relevant actors, including whether and how their values and beliefs enter research agendas, as well as more theoretical papers engaging with the political economy of these platforms.

Reading club Nov, 11: Margaret J. Radin “Contested commodities” — November 4, 2015

Reading club Nov, 11: Margaret J. Radin “Contested commodities”

This is a reminder of the upcoming reading club on the final part of Margaret Jane Radin’s book “Contested Commodities” (http://www.hup.harvard.edu/catalog.php?isbn=9780674007161). 
 
We will meet on November 11 (2:30-4:30 pm GMT) in Room 3.1.1 East wing KCL Strand building.
 
This is the schedule:
 
Federica. ch.8
Christine. ch.9
Barbara. ch.10
Lorenzo. ch.11
Planning of the next activities.
 
Skype attendance is welcome!